Privacy Policy

1. Privacy Policy

1.1 Personal Data

SATRE does not collect, store, or display:

Names, initials, dates of birth, addresses, or contact details;
Hospital identifiers or other direct identifiers;
Raw genomic data linked to identifiable individuals.

All patient‑related information is:

Fully de‑identified;
Derived from published or ethically approved sources.

SATRE does not process personal data as defined under the UK GDPR.

1.2 Website Analytics

SATRE may track limited, non‑identifiable technical information such as:

Browser type;
Pages accessed;
Date and time of access.

This information is used solely to:

Monitor website performance;
Improve usability and functionality.

No tracking is performed for advertising or commercial profiling purposes.

1.3 Legal Basis for Processing

Under the UK GDPR, any limited processing performed by SATRE is based on:

Public task (Art 6 (e)) and scientific research purposes (Art 9 (j));

Users must ensure that any processing of personal data they undertake while accessing or using the SATRE website or database is in accordance with the UK GDPR, including that there is a legal basis for processing.

2. Data Accuracy and Limitations

While every effort is made to ensure accuracy:

SATRE relies on published data and third‑party sources that may contain errors or evolve over time;
Variant classifications and phenotype associations may change as new evidence emerges.

SATRE makes no warranties regarding completeness, correctness, or clinical validity of the data.

Users are strongly encouraged to:

Consult original publications;
Cross‑reference with clinical databases and guidelines;
Apply independent expert judgment.

3. Disclaimer

SATRE is provided as an academic research resource and is made available in good faith. While every effort is made to ensure the accuracy and reliability of the information presented, SATRE does not guarantee that the data are complete, up to date, or free from error.

The SATRE team, contributors, and host institutions accept no responsibility for any clinical decisions made on the basis of information obtained from this database. Users are encouraged to verify all information against original sources and to apply independent professional judgment.

4. Intellectual Property

The structure, curation, and original content of SATRE are protected by copyright.
Users may:
- View, download, and use data for non‑commercial research and educational purposes;
- Cite SATRE appropriately in publications and presentations.
Users may not:
- Redistribute the database in full for commercial purposes;
- Present SATRE data as their own curated work;
- Use the database for commercial diagnostic services without explicit permission.

Suggested citation format will be provided on the website.

5 User Responsibilities

Users agree to:

Use SATRE responsibly and ethically;
Acknowledge data limitations;
Respect applicable laws, regulations, and ethical standards;
Not attempt to re‑identify individuals from aggregated or de‑identified data.

Any misuse of the database may result in restricted access.

SATRE welcomes feedback and corrections; however, the inclusion or modification of data remains at the discretion of the SATRE team.

6. Downloads and External Links

SATRE may provide downloadable materials and links to third-party websites, databases, or resources for the convenience of users.

While reasonable efforts are made to ensure that materials made available for download from SATRE are safe and reliable, the SATRE team does not guarantee that downloadable files will be free from errors, viruses, or other harmful components. Users are responsible for implementing appropriate safeguards, including data backup and security measures, when accessing or downloading content from the site.

Links to external websites are provided for informational purposes only and do not constitute endorsement or recommendation by the SATRE team, contributors, or host institutions. SATRE does not operate, control, or maintain external websites and has not necessarily reviewed their content.

SATRE makes no representations regarding the accuracy, reliability, availability, or suitability of information, products, or services offered by third-party sites and accepts no responsibility for any loss, damage, or injury arising from their use. Users who choose to access external resources do so at their own discretion and risk.

7. Changes to This Policy

SATRE reserves the right to update or modify this Terms & Conditions and Privacy Policy at any time.

Updated versions will be posted on the website with a revised “Last updated” date.

Continued use of SATRE constitutes acceptance of the revised terms.

8. Governing Law

This policy is governed by and construed in accordance with Scots law.

9. Contact Information

For questions, corrections, feedback, or concerns regarding SATRE, please contact:

SATRE Team at